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  • Edinburgh University scheme gives researchers new insight

    Edinburgh University scheme gives researchers new insight

    08.01.19 A university “buddy scheme” pairs researchers with people who have dementia so that they can learn from each other. The scheme, headed by Dr Chris Henstridge at Edinburgh University’s Centre for Discovery Brain Sciences, is designed partly to give clinical researchers a more rounded view of the experience of living with dementia. Henstridge said that researchers had a “very clinical understanding of what dementia really is” and did not normally communicate with people living with dementia, according to the BBC website. “We read about [dementia] all the time but we don’t really get the opportunity to experience and interact with people who live with the disease on a daily basis,” he said. Lilian Kennedy, the scheme’s coordinator, told the BBC that she used to coordinate clinical trials, “but what I found over the course of my years doing that is our participants who were coming in – and their carers – had so much knowledge that some clinical processes weren’t able to capture.”

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  • Care England leader condemns human rights watch for ageism

    Care England leader condemns human rights watch for ageism

    07.01.19 Professor Martin Green of Care England, has told the Guardian that the UK is “completely and institutionally ageist,” accusing the Equality & Human Rights Commission (EHRC) of failing to pursue many ageism cases through the courts. He said the EHRC should “hang their heads in shame” for not pursuing ageism cases in the way it pursues those for racism and homophobia. “The EHRC is ignoring the elephant in the room in such a determined way – despite me personally drawing it to their attention numerous times – that I can only assume they’re part of the problem: that they’re imbued with the same institutionalised ageism as the rest of society,” Green said. The EHRC denied Green’s claims, saying that he was “entirely wrong”, although the commission’s own figures show that just nine of the 40 cases concluded in 2017-18 involved age. Read the article HERE.

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  • E-Newsletter 04.01.19

    E-Newsletter 04.01.19

    I am delighted to bring you 2019's first round-up of dementia care news, stories and comment. This week's topics include new research on personalised care plans, the New Year's Honours and a promising new line of research on dementia treatments. It is an editor's selection which I hope you will enjoy.

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  • University of Worcester seeks professionals to join Namaste community

    University of Worcester seeks professionals to join Namaste community

    02.01.19 Trial implementation of Namaste care, an approach for meeting the needs of people with advanced dementia, has been completed in six care homes by the University of Worcester Association for Dementia Studies. The three-year Namaste care intervention, which began in 2016, is funded by Alzheimer’s Society as a means of meeting the physical, sensory and emotional needs of people with advanced dementia. Professionals practising or interested in Namaste care have been invited to sign up to a Namaste Community of Practice HERE. Further information about the project is available HERE

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  • Parliament invites experts to contribute on DoLS reform

    Parliament invites experts to contribute on DoLS reform

    28.12.18 Parliament has invited anyone with relevant knowledge or experience to give their views on the Mental Capacity (Amendment) Bill, which will reform the deprivation of liberty safeguards (DoLS) and is being debated in the House of Commons. Following a second reading in the Commons this week, it will be considered by MPs in the public bill committee which is due to meet for the first time on 15 January. The Bill would replace DoLS, which are seen as too bureaucratic, intrusive and subject to long delays, with a new system of Liberty Protection Safeguards. Written submissions should reach the committee before it completes its deliberations, expected to be no later than 24 January. More information HERE.

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  • Council hail family carers as keeping system afloat

    Council hail family carers as keeping system afloat

    27.12.18 Councils are being urged to boost the support they give to family carers, helping them to avoid the physical illnesses and mental health problems like depression, stress and anxiety to which they are prone. Describing unpaid carers as “unsung heroes,” the Local Government Association (LGA) said that without them the health and social care system would collapse. Issuing a new document – “Supporting Carers: Guidance and Case Studies” – the LGA called on councils to use it to “further improve” the support carers receive. Among the initiatives showcased in the report are respite breaks, tailored information and advice, and discount cards especially for carers. Click HERE for the document.

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  • Social care proposals put on hold as Brexit crisis mounts

    Social care proposals put on hold as Brexit crisis mounts

    24.12.18 Plans for reforming social care, promised by the government by the end of the year, appear to have been put on hold yet again, this time as a result of the Brexit crisis. Originally slated for publication in late 2017, the government’s social care green paper has been repeatedly delayed and now seems likely to be introduced for debate in the House of Commons in the new year. Among the proposals for funding social care reportedly on the table are a new savings product called a “care Isa”, a “care pension” and a “social care premium”, essentially a new tax payable by the over-40s. Nadra Ahmed, chief executive of the National Care Association, said the delay was no surprise. “Successive governments have raised the issue of social care only to kick it into the long grass,” she commented.

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  • E-Newsletter  21 Dec 2018

    E-Newsletter 21 Dec 2018

    I am delighted to bring you the last of my weekly round-ups of dementia care news, stories and comment for 2018. Back in January! This week's topics include Namaste community of practice, DoLS reform and Brexit. It is an editor's selection which I hope you will enjoy.

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  • Christmas wishes...

    Christmas wishes...

    Season's greetings and best wishes for a merry Christmas!

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  • Quick guide about post-diagnostic support

    Quick guide about post-diagnostic support

    21.12.18 NICE and SCIE have developed a new quick guide to inform people and their family and carers about the available support after a diagnosis of dementia. It says people should have information about their care options and should have access to a named professional who will coordinate any care and support they may need. Information should also cover health, including treatment and therapies, and activities of daily living, such as driving and working. “A diagnosis of dementia may create very mixed emotions. Coming to terms with it, making decisions and planning ahead are all part of living well with dementia,” NICE says. Click HERE for the guidelines.

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