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  • Basic human rights ignored says study

    Basic human rights ignored says study

    07.09.20 The basic human rights of people with dementia may have been compromised during the pandemic, researchers have said, with “extremely high death rates” among older people with the condition. In a global impact study, put together by researchers from the LSE and UCL, data on Covid-19 mortality in people with dementia ranged from 66% of all deaths in Canada and 26% in the UK to 19% in Italy. Alzheimer’s Disease International (ADI) said a global effort was needed to create an action plan for protecting people with dementia from the “worst ravages” of coronavirus. Data from the LSE/UCL report suggest that up to 75% of Covid-19 deaths in care facilities across the world have involved dementia as an underlying condition. “People with dementia are being disproportionately impacted by this pandemic and are in danger of being forgotten. Now more than ever we need to talk about dementia,” said ADI chief executive Paola Barbarino.

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  • E-Newsletter - 4 Sept 2020

    E-Newsletter - 4 Sept 2020

    Here is this week’s round-up of dementia care news, stories and comment. This week's topics include a judicial review of visiting restrictions to care homes, a study exploring high Covid-19 death rates of people with dementia and a call to nominate top 10 favourite songs for a dementia friendly radio station. It is an editor's selection which we hope you will enjoy.

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  • Charity seeks Judicial Review on care home visit guidance

    Charity seeks Judicial Review on care home visit guidance

    03.09.20 A dementia charity is seeking a judicial review of the government guidance on care home visits, saying that many care homes in England are still refusing regular face-to-face visits, often essential for people with severe dementia. John's Campaign co-founder Julia Jones, whose mother June spent the last two-and-a-half years of her life in a care home, said: "We know we're speaking for thousands who are experiencing extraordinary bewilderment and anguish. We can only hope that the government will waste no more of these people's precious time and will give clear direction and the necessary support for their needs and wishes to be respected." John’s Campaign have also said that this is not an attack on care homes, stating that they are too often victims themselves, but is criticism of poor government.

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  • Volunteers urged to contribute to NAPA choir

    Volunteers urged to contribute to NAPA choir

    04.09.20 The NAPA Activity Awards 2020, which will take place online on 2 October, will feature a special performance from the NAPA Choir. A specially formed ensemble will perform during the awards ceremony and will include the voices of care providers, professionals and the people they support. NAPA (National Activity Providers Association) said it would be an “uplifting collective acknowledgement of all we have experienced during this difficult time.” Individual volunteers and groups are asked to record themselves singing “We are the Champions”, using lyrics and a backing track supplied by NAPA, and send the recording to communications@napa-activities.co.uk by 5pm on 6 September.

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  • My Home Life produces tips on self-care for staff

    My Home Life produces tips on self-care for staff

    03.09.20 Tips for care home managers on looking after themselves and their colleagues amid the stresses and strains of the pandemic are available from My Home Life. Based on the experience of care homes and the strategies they have introduced to cope during “tough times,” the free downloadable resource recommends simple techniques to decrease stress and anxiety. “Looking after yourself and those around you”, from My Home Life, an initiative to promote quality of life and deliver positive change in care homes, is available here

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  • Family carers' group calls for more recognition of care home role

    Family carers' group calls for more recognition of care home role

    02.09.20 Alzheimer Scotland’s National Dementia Carers Action Network (NDCAN) has called for greater recognition for the role of family carers in supporting their relatives in care homes. The lobby group said their role had been neglected despite the stress of lockdown, which appeared to have accelerated the decline in care home residents’ health. “We are a vital part of the system, but our contribution seems very low on the priority list currently and the role we can play in caring for our loved ones needs to be recognised,” NDCAN said. “Our wellbeing is also affected by being excluded from their lives. We have cared for these people 24/7 and know their needs so well – we can be their voice and are part of their history and what makes them who they are.” NDCAN member Janette Kean told the Sunday Post: “We have been excluded from their homes with no consultation and we know that many people with dementia have given up as a result.”

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  • NCF insists that CQC inspectors should be tested

    NCF insists that CQC inspectors should be tested

    01.09.20 Not-for-profit care home organisation the National Care Forum (NCF) has urged the government to reverse a decision to allow inspectors into homes without undergoing a coronavirus test beforehand. In an open letter to health secretary Matt Hancock, NCF said the policy of excluding Care Quality Commission (CQC) inspectors from weekly testing prior to care home visits was an “extraordinary decision”. It added that inspectors typically spent several hours on-site, moved between different groups of residents and staff, and potentially visited multiple homes. “We welcome scrutiny and oversight by the regulator and we all want the CQC to be able to regulate effectively,” said NCF chief executive Vic Rayner. “However, this must include routine regular testing for those inspectors tasked with conducting on-site inspection visits to care settings.”

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  • Major dip in Alzheimer's research

    Major dip in Alzheimer's research

    28.08.20 Data collected by the medical research platform MediFind suggests that Alzheimer’s research has dropped by 26% as research funders have concentrated resources on coronavirus. MediFind said that the shift in focus had caused other diseases to become an “afterthought” and that it would be likely to have an impact on public health for years to come. “Medical research is a cumulative process and, typically, there’s a significant time lag between most research and improvements in patient outcomes,” MediFind said. “Consequently, the diversion of resources to Covid-19 will almost certainly lead to a long-term slowdown in advances for these conditions.”

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  • E-Newsletter - 28 Aug 2020

    E-Newsletter - 28 Aug 2020

    Here is this week’s round-up of dementia care news, stories and comment. This week's topics include My Home Life tips on self care for managers, a National Care Forum request for Covid-19 testing of CQC inspectors, and a chance to join the NAPA choir. It is an editor's selection which we hope you will enjoy.

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  • E-Newsletter - 21 August 2020

    E-Newsletter - 21 August 2020

    .Here is this week’s round-up of dementia care news, stories and comment. This week's topics include a new digital project launched by the National Care Forum and a Yorkshire care home group sounding alarm over the cost of insurance cover during the pandemic. It is an editor's selection which we hope you will enjoy.

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