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  • Time to send us your proposals for the 14th UK Dementia Congress

    Time to send us your proposals for the 14th UK Dementia Congress

    07.02.19 The call for presentations has gone out for the 14th UK Dementia Congress, organised by the Journal of Dementia Care and taking place this year at Doncaster Racecourse (5-7 November) – keep an eye on the website for developments. The deadline for proposals for presentations and posters is midnight on 28 April and they can cover any aspect of support, care and treatment for people with dementia and their families. Guide for submitting a proposal is HERE

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  • NHS could be 'overwhelmed' if genetic tests for dementia are sold

    NHS could be 'overwhelmed' if genetic tests for dementia are sold

    06.02.19 Plans for the NHS to sell genetic tests to healthy people, predicting their chances of getting conditions like dementia and cancer, could result in massive demand from the “worried well” critics have said. The plans, revealed by the Times newspaper, would allow healthy people to have their genetic code sequenced as part of a scheme from health ministers to encourage more people to volunteer their genetic data for research. MPs on the health select committee warned health secretary Matt Hancock that GPs could be overwhelmed by queries from the worried well and that it would create a two-tier NHS in which those who could afford the test would have time to take preventive action denied to others.

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  • Hypothermia guidance

    Hypothermia guidance

    05.02.19 Guidance on hypothermia has come out from the Care Quality Commission (CQC) as part of its series of “learning from safety incidents” resources. Among those the CQC says are at risk of hypothermia are older people in care homes and receiving care at home, people with reduced mental capacity or mobility, and people who cannot communicate that they are exposed to cold. Among the incidents cited in the report as a source of learning is one in which a resident was found to be suffering from severe hypothermia and pneumonia after the care home’s boilers failed. The care home provider’s registration was cancelled.

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  • 'No deal' announcement on free movement worries care sector

    'No deal' announcement on free movement worries care sector

    04.02.19 Health and social care organisations have expressed concern at government plans to halt free movement of workers in the event of “no deal” with the European Union. While EU citizens already resident here on 29 March will be able to stay, as long as they apply to a special settlement scheme, those arriving after that date will be subject to UK immigration rules, the government announced last week. Danny Mortimer, co-convenor of the Cavendish Coalition of health and social care organisations, said EU citizens coming here after 29 March would be able to apply to work in the UK for three years in the first instance. "Any process for securing the right to work must, however, be easy to navigate for all parties, and the government must dramatically improve upon its white paper on immigration,” Mortimer said.

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  • E-Newsletter  1 Feb 2019

    E-Newsletter 1 Feb 2019

    I am delighted to bring you my week’s round-up of dementia care news, stories and comment. This week's topics include hypothermia guidance, the opening of the call for presentations for UK Dementia Congress 2019 and care sector concerns about "no deal" announcement on free movement of workers. It is an editor's selection which I hope you will enjoy.

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  • BBC presenter says British Asians need help to talk about dementia

    BBC presenter says British Asians need help to talk about dementia

    01.2.19 BBC presenter Rajan Datar has talked about how, after learning that his own father had dementia, he discovered that a “combination of stigma, language barriers and cultural differences” was preventing people in the south Asian community from seeking help. “Sharing [my father’s diagnosis of mixed dementia] openly is not the easiest thing to do, and I certainly wouldn’t have done it without his full blessing and cooperation,” Datar says. “But the fact is both his elder sisters died in their 80s with advanced dementia, and British Asians are less likely to be diagnosed – and therefore be given the support they need – when they have the condition.” The article on the BBC website suggests that the NHS must do more to surmount language barriers and cultural differences, for example with literature, assessments and a helpline in languages such as Punjabi. For the article, click HERE.

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  • Head of Dementia Research Institute laments cost of Brexit

    Head of Dementia Research Institute laments cost of Brexit

    31.01.19 Bart De Strooper, head of the UK Dementia Research Institute (DRI), has told the Observer that he would not have gone for the job had he known about the full implications of Brexit. De Strooper has said Brexit will make it more difficult to achieve the goals of the DRI, set up in 2016 at a cost of £250 million to make the UK a world leader in dementia research. The DRI already faces serious funding and recruitment problems, says De Strooper, who is Belgian. “I am not going to be able to convince bright young scientists to come over, along with their families, so that they can work with me and help beat the scourge of dementia. They know they will not be made welcome. Some are already being turned back, in fact.” But De Strooper insisted he would continue in his role as DRI director. For the full story, click HERE.

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  • Care homes should offer 'more nourishing food and drink', expert says

    Care homes should offer 'more nourishing food and drink', expert says

    30.01.19 A hospitality expert has launched a one-man mission against “sub-standard food and service” for people with dementia in care homes after finding that the average care home spends an average of just £2.44 a day on food and drink for residents. Norman Dinsdale, a former chef and hospitality management lecturer at Sheffield Business School, arrived at the figure after interviewing caterers and managers at nine residential care homes. “I was devastated to see several members of my family and extending circle of friends living and dying with dementia, some in care homes,” Dinsdale said. “For people living with dementia, nourishing food and drink is an essential requirement. I found there was plenty of information on nutrition, dietetics and nursing, but zero on how caterers and nutritionists should work together.” Dinsdale said he wanted care homes to introduce better systems so that they could give residents more to look forward to and improve their quality of life.

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  • First workshop for Meeting Centres Support Programme announced

    First workshop for Meeting Centres Support Programme announced

    29.01.18 The first of a series of Meeting Centres workshops will be held in March following major new funding to support the expansion of the centres across the UK. It comes after a Big Lottery Fund award of £587,000 to the University of Worcester Association for Dementia Studies to run the Meeting Centres Support Programme, which will support communities to set up the Meeting Centres as local resources offering warm and friendly expert help to people living at home with dementia. The workshop, the first of many to take place in different areas during the coming year, is scheduled for the University of Worcester Arena on 26 March. It is designed to help people think about and plan how a Meeting Centre might work in their community. For more information on the workshop and to book a free place, click HERE

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  • Proposals for DoLS replacement are 'entirely unfit', say charities

    Proposals for DoLS replacement are 'entirely unfit', say charities

    28.01.19 An open letter signed by 13 charities, including Alzheimer’s Society, calls on the government to change its plans for what the letter describes as an “entirely unfit system of protection” to replace the Deprivation of Liberty Safeguards. The Mental Capacity (Amendment) Bill, now before the House of Commons, would introduce a new system of “Liberty Protection Safeguards”, but critics say that the Bill would hand too much power to care home managers and private hospitals, who would be able to deprive someone in care of their liberty without sufficient independent safeguards. In the letter, the charities express dismay at the “lack of improvement” within the Bill and describe it as a “rushed, incomplete and unworkable Bill that will only replace one dysfunctional system with another.” It questions whether the planned safeguards will uphold people’s fundamental rights and avoid the risk of exploitation and abuse.

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