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  • JDC Asks...

    JDC Asks...

    The new NHS long-term plan promises to improve care for people with dementia, whether in hospital or at home. What should the NHS’s top priority be to achieve this?

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  • Look online for full report on NDAA annual conference

    Look online for full report on NDAA annual conference

    09.03.19 A full report on the National Dementia Action Alliance (NDAA) annual conference, which took place on 6 February, can now be found online. Among more than 100 attendees, speakers and sponsors was co-chair Chris Maddocks, a member of the 3 Nations Dementia Working Group who has young onset vascular dementia. The first session was chaired by Alzheimer’s Society chief executive Jeremy Hughes, who introduced APPG on Dementia co-chair Debbie Abrahams MP to speak on its “Dementia as a disability” inquiry which she said had had an unprecedented number of responses. Report HERE

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  • Matt Hancock issues stark warning to PM on proposed care cap

    Matt Hancock issues stark warning to PM on proposed care cap

    08.03.19 In a sternly worded letter leaked to the Telegraph newspaper health secretary Matt Hancock has warned the Prime Minister against plans to include a £100,000 cap on care costs in the forthcoming social care Green Paper. Hancock told Theresa May he was “concerned” that the cap, under which people would pay a maximum of £100,000 for their social care over their lifetime, would cost up to £3.4 billion. Such a move “confers a significant benefit to the well-off at the expense of the general taxpayer,” he insisted, adding that “raising taxes is likely to be the most promising choice to fund this.” Alzheimer’s Society was also critical of the proposed cap. “A £100k cap on costs is not a solution to the social care crisis we are facing: our calculations show even a lower cap of £80k would at most only help 5% of people with dementia,” said policy director Sally Copley.

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  • Charities 'horrified' by impact of NHS continuing healthcare savings

    Charities 'horrified' by impact of NHS continuing healthcare savings

    07.03.19 Plans by NHS England to make hundreds of millions in savings on continuing healthcare and NHS-funded nursing care are seeing more people with dementia being refused free health and social care, a national newspaper investigation has found. According to the Telegraph’s investigation, clinical commissioning groups (CCGs) are saying no to more people applying for NHS continuing healthcare, claiming that health needs are not sufficiently severe and leaving families with bills of up to £100,000 a year. People with dementia qualify for continuing healthcare if they can show that the majority of their needs are health needs, otherwise they face having to pay for social care. Charities told the Telegraph that they were “horrified” by the findings, which showed a stark north-south divide and a 19-fold variation in the likelihood of receiving funding from one part of the country to another.

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  • New cross-party parliamentary group launches inquiry into social care

    New cross-party parliamentary group launches inquiry into social care

    06.03.19 A big public sector union has teamed up with one of the largest care home providers to support a new parliamentary group to tackle the social care crisis. The All-Party Parliamentary Group (APPG) on social care is sponsored by the GMB Union and has come together to look at the care system, funding and the state of staffing in the sector. The APPG, whose first inquiry will be sponsored by care provider HC-One, will take evidence as the sector awaits the government’s long-promised social care Green Paper. “Our care system right now is in crisis, it is crumbling beneath us because the funding isn’t there,” said GMB general secretary Tim Roache. “I’m proud GMB is supporting this new parliamentary group which will look at real lives and real situations and will make evidence-based proposals about what must be done in government to make sure we have a care system which values our care workers, and everyone gets the care and support they need.”

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  • Research finds high levels of dementia-related agitation in care homes

    Research finds high levels of dementia-related agitation in care homes

    05.03.19 Findings from a major research project on dementia and agitation were released last week following a five-year programme. Led by UCL’s Professor Gill Livingston, the MARQUE project (Managing Agitation and Raising Quality of Life) covered six workstreams involving people with dementia and those who care for them, both in their own homes and in formal care settings. Among the key findings was that, while agitation is common in dementia and reduces quality of life, family carers and care home staff are often not equipped to deal with it. MARQUE claims to be the largest ever study of care home residents with dementia, finding that 86% of all residents had dementia and that, of those, 40% had clinically significant agitation symptoms while 86% had some agitation symptoms. Report HERE

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  • E-Newsletter 01.03.19

    E-Newsletter 01.03.19

    I am delighted to bring you my week’s round-up of dementia care news, stories and comment. This week's topics include a progress review on Dementia 2020 and research on dementia-related agitation in care homes. It is an editor's selection which I hope you will enjoy.

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  • Progress report on Dementia 2020 Challenge criticises GP role

    Progress report on Dementia 2020 Challenge criticises GP role

    04.03.19 Launching a progress review on the government’s Dementia 2020 Challenge, care minister Caroline Dinenage called this week for a stronger focus on young onset dementia and more participation in research by all people with the condition. The progress review also raised questions about GPs’ coordinating role in relation to dementia and whether they needed additional training to improve care for young people with dementia. The progress review can be found HERE

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  • What works in dementia education and training?

    What works in dementia education and training?

    How can training in dementia care best be delivered to health and social care staff? Claire Surr and colleagues report on the findings of a major study that set out to discover what works in providing dementia education for the workforce

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  • Communication: the Bouncing Balls workshop

    Communication: the Bouncing Balls workshop

    How do you show care home staff the impact of communication difficulties on people with dementia? Helen Moores-Poole says the “Bouncing Balls” workshop is a simple and powerful way to convey the message

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