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  • E-Newsletter 19 April 2019

    E-Newsletter 19 April 2019

    Here is this week’s round-up of dementia care news, stories and comment. This week's topics include a flagship technology research centre, the world's largest survey on dementia and new HEE dementia workforce e-learning programme session. It is an editor's selection which I hope you will enjoy.

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  • Documentary highlights plight of LGBT+ people as they get older

    Documentary highlights plight of LGBT+ people as they get older

    24.04.19 LGBT+ people are hiding their sexual or gender identity in care homes because they are afraid of bullying and discrimination. It is the basis of a new documentary film by Glenda Rome, “Return to the Closet?”, which is being premiered in Glasgow on 1 May, as part of the Luminate festival for older citizens. The film-maker told the Scotsman newspaper that extensive interviews for the film uncovered examples of older people in care homes “de-gaying” because they feared revealing their true identities and many care homes reported that they had no LGBT+ residents. “The idea of older people feeling they have to ‘go back into the closet’ is terrible,” Rome is quoted as saying. “It’s something people are just starting to think about now and the last thing we need is for the progress that has been made, which was hard-won for a generation who lived through the criminalisation of their sexuality, to be undermined.”

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  • Take part in 'world's largest survey' on dementia

    Take part in 'world's largest survey' on dementia

    23.04.19 Alzheimer’s Disease International (ADI) has asked the LSE to carry out what is billed as the “world’s largest survey” of people’s attitudes to dementia, with the results due in time to be published in the World Alzheimer Report later this year. ADI says the survey, which will be worldwide and is available in multiple languages, takes about 10 minutes to complete. It is aimed at four groups: health and care professionals, people living with dementia, carers of people with dementia, and the general public. The survey, which will be live on ADI’s website until 15 June, is intended to inform improvement of services. Dr Sara Evans-Lacko from the LSE said: “[Dementia] is a global issue with considerable public health significance...With this survey we are seeking to establish an understanding of current attitudes about dementia and gather data on first hand experiences of people living with dementia and their carers around the world."

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  • Flagship technology research centre

    Flagship technology research centre

    23.04.19 A £20 million Care Research & Technology Centre is being set up in London to focus on how artificial intelligence (AI) and robotics can help people with dementia live independently in their own homes. A joint venture between Imperial College and University of Surrey, it will be the seventh specialist centre established as part of the new UK Dementia Research Institute (DRI). Led by the neurologist Professor David Sharp, the centre will develop technological solutions to independent living such as home sensors to track vital signs, AI to integrate patient information in real time and flag up changes, monitoring memory and cognitive function, and methods to track sleep disturbance. Robots capable of interacting with someone with dementia are also on the new centre’s radar as a means of alerting people to safety risks, such as spilt liquid on the floor or a cooker left on, and tipping off the health care team if a person seems agitated or distressed.

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  • Alzheimer's Society produces guides for Dementia Action Week

    Alzheimer's Society produces guides for Dementia Action Week

    19.04.19 Three guides are available from Alzheimer’s Society for Dementia Action Week (May 20 – 26) - Schools Guide, Workplace Guide and an Individuals and Local Communities Guide. The Society hopes that workplaces, schools and communities will unite to take action: “Almost all of us know someone affected by dementia. But too many people living with dementia report feeling cut off from their community, losing their friendships and facing dementia alone. Having dementia shouldn’t mean an isolated life. And it doesn’t have to. Simple actions from us all can create supportive communities - where people living with the condition can continue to socialise with others, hop on the bus, go to their favourite shops or take part in local activities for as long as possible.” The guides can be found HERE

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  • NICE quick guide helps managers advise on advance care planning

    NICE quick guide helps managers advise on advance care planning

    18.04.19 A new quick guide for care home and home care managers is designed to help them provide support for advance care planning, which gives people the chance to plan for future care and support if there comes a time when they no longer have the mental capacity to decide for themselves. Produced by the National Institute for Health and Care Excellence (NICE), the guide covers advance statements, lasting power of attorney and advance decisions under the Mental Capacity Act. Managers are advised in the guide to “be ready at any time to explain the purpose of advance care planning, and discuss the advantages and challenges.” More info HERE

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  • Housing network appeals for examples of schemes to tackle lonliness

    Housing network appeals for examples of schemes to tackle lonliness

    17.04.19 The Housing LIN network is gathering examples of support that housing schemes are providing to prevent social isolation and reduce loneliness among people with dementia. It has put out a call for examples from extra care schemes and housing-related community services, with the aim of publishing the results during Dementia Action Week, 20th - 26th May. Further details HERE

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  • MoneySavingExpert campaign for people with dementia

    MoneySavingExpert campaign for people with dementia

    16.04.19 Thousands of people with dementia could benefit after the government in Wales pledged to publicise council tax discounts for those who are “severely mentally impaired” (SMI). Following a campaign by Martin Lewis on his MoneySavingExpert website, the Welsh Government said it would make it easier for people to get the council tax discounts that everyone with SMI in England, Scotland and Wales has been entitled to in theory since 1992. “People with severe dementia are eligible for discounts or even exemptions on their council tax, but we know from talking to people with dementia that they often aren’t aware of these crucial entitlements,” said Sally Copley, Alzheimer Society’s director of policy, campaigns and partnerships. “We echo Martin Lewis’s call for the discount to be backdated and for all local authorities to ensure there’s a clear and consistent process going forwards.”

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  • Wales introduces highest capital disregard for residential care in UK

    Wales introduces highest capital disregard for residential care in UK

    15.04.19 People in Wales now have the highest limit in the UK on the capital assets which are disregarded when it is decided whether they can have publicly funded residential care. The Welsh Government confirmed last week that the capital limit would go up by £10,000, meaning that people can have up to £50,000 before they are charged directly for residential care. It is more than double the £23,250 allowed in England and Northern Ireland, and also well above Scotland’s allowance of £28,000.

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  • E-Newsletter 12 April 2019

    E-Newsletter 12 April 2019

    Here is this week’s round-up of dementia care news, stories and comment. This week's topics include an arts based development programme for dementia care workers, a NICE quick guide for managers on advance care planning, and the new higher capital disregard for residential care in Wales. It is an editor's selection which I hope you will enjoy.

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