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  • Services let down people with young onset dementia

    Services let down people with young onset dementia

    27.11.20 Services for people with young onset dementia (YOD) remain patchy with in many cases little continuity from diagnosis to post-diagnostic support, Professor Jan Oyebode told the UK Dementia Congress held online. Oyebode was reporting on the findings of the Angela Project, a major study of young onset, which found that only 18.1% of people surveyed received a diagnosis in specialist YOD services while 17.1% were diagnosed in older people’s mental health services. “There was a lack of follow-up services. 42% received no follow-up appointment in the first six weeks after diagnosis,” said Oyebode, from Bradford University’s Centre for Applied Dementia Studies. She called for further specialist YOD services to be commissioned.

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  • 20% off JDC subscription for UKDC ticket holders

    20% off JDC subscription for UKDC ticket holders

    26.11.20 UK Dementia Congress 2020 ticket holders can still take advantage of the 20% discount to subscribe to Journal of Dementia Care. Sign up before 30th November via subscriptions@investorpublishing.co.uk using your special UKDC code. The annual subscription includes: printed editions of The Journal of Dementia Care (JDC), exclusive subscriber rates for future JDC events; access to JDC online and article archive and a weekly JDC e-newsletter.

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  • LGBTQ+ online group speaks out for people with dementia

    LGBTQ+ online group speaks out for people with dementia

    25.11.20 “Speak out with dementia” is a new online group for people who are living with a diagnosis of dementia, and who identify as LGBTQ+ (lesbian, gay, bisexual, trans, queer). It will give members the chance to express themselves and support each other in a safe environment where their experiences, their identity and their relationships will be affirmed. Meetings will be held on Zoom. The group is supported by AD Advocacy, with funding from The National Lottery Community Fund Grant, and will be affiliated to the DEEP network. Speak out with dementia meets every week on Tuesdays from 5 – 6pm. More information from Lucy Whitman or Aimee Day at Speakoutwithdementia@gmail.com

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  • New initiatives as concerns grow about football's dementia links

    New initiatives as concerns grow about football's dementia links

    24.11.20 As fresh concerns were raised about links between heading footballs and dementia, Alzheimer’s Society launched a Sport United Against Dementia campaign to raise awareness and spearhead change. Ex-professional footballer and Society ambassador Robbie Savage has backed the campaign, which was launched following the deaths of Jack Charlton and Nobby Stiles with dementia and the dementia diagnosis of Sir Bobby Charlton, all former England footballers. Alzheimer’s Society CEO Kate Lee said the charity had partnered with several sports on the campaign, which she said would seek answers and the right support in relation to dementia. “We want to see much more research into the links between dementia and football, but this will take time and needs funding, particularly when charities like ourselves have been badly hit financially by the pandemic,” Lee commented.

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  • Pilot scheme in West Country could open way for family visits

    Pilot scheme in West Country could open way for family visits

    23.11.20 Twenty care homes across Hampshire, Devon and Cornwall are at the centre of a pilot scheme to promote family visits during the pandemic. The government hopes that the trial will open the way for visits to more care homes across the country in time for Christmas. In the pilot scheme, regular testing will be offered for one family member or friend per resident. These “key visitors” will take the test and if they are covid-free they will be allowed an indoor visit without a screen. “Visits with a screen or window are better than nothing for many, but they are too confusing or simply impossible for people with advanced dementia,” said care minister Helen Whately. But Alzheimer’s Society director of research and influencing Fiona Carragher expressed concern that it could be “too little too late” for what she described as desperate families.

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  • 'Pandemic hit us like a tsunami'

    'Pandemic hit us like a tsunami'

    23.11.20 “The pandemic hit us like a tsunami,” said Suzanne Mumford, who leads on quality development at Care UK care homes. “We knew it was coming but it seemed very little time to prepare,” she told UKDC, commenting on the “extraordinary lengths” to which staff had gone in supporting residents. “Our colleagues are exhausted, but they’ve given their all and they’re ready to give even more now we’re entering a second wave,” Mumford said. Asked about the government’s care home visiting guidelines, she admitted that Care UK stretched them to the limit. “When residents are extremely distressed, family can come so that they can spend time together. If people have been together for 50 years, can we deny them the opportunity to be with their relative?”

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  • E-Newsletter 20 Nov 2020

    E-Newsletter 20 Nov 2020

    Here is this week’s round-up of dementia care news, stories and comment. This week's topics include announcing the winners of the National Dementia Care Awards, a pilot scheme to promote family visits to care homes and a round up of some highlights from UK Dementia Congress 2020. It is an editor's selection which we hope you will enjoy.

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  • Consultation: Stopping movement of staff

    Consultation: Stopping movement of staff

    19.11.20 Last Friday the government published a consultation on proposals to restrict the movement of care workers in England if they work in more than one health and care setting. The proposals would prevent care and nursing home staff working in two different care settings within a 14-day period. The National Care Forum has published its response to the proposals here and is encouraging all care providers to make their voices heard in this consultation so that the government understands what is possible to implement in the middle of a pandemic and the resources needed to do it. The consultation ends at 12pm Monday 23 November and can be completed online here

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  • Dementia Care Awards 2020 - winners announced!

    Dementia Care Awards 2020 - winners announced!

    17.11.20 Following a successful online 15th UK Dementia Congress last week, the National Dementia Care Awards celebrated their eleventh birthday at a virtual awards presentation. Investor Publishing and the Journal of Dementia Care are proud to highlight excellence and innovation, and to have the opportunity to celebrate those who provide consistently outstanding care. Congratulations to all the winners and finalists! A full list of winners can be found on our website here

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  • Communication resources from Cardiff University

    Communication resources from Cardiff University

    17.11.20 Professor Alison Wray at Cardiff University has developed some good film resources on communication in dementia care. The latest film is Dementia Communication Across Language Boundaries: Developing Language Awareness. This covers different aspects of communication between carers and people with dementia from different language backgrounds. Link click here

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