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  • John's Campaign celebrations in Edinburgh for National Carers Week

    John's Campaign celebrations in Edinburgh for National Carers Week

    24.06.19 During National Carers Week last week, the city of Edinburgh took the opportunity to celebrate its growing adoption of “John’s Campaign,” started by dementia care campaigners Nicci Gerrard and Julia Jones. In the Edinburgh Health and Social Care Partnership 65 care homes, community hospitals and older people’s wards have signed up to John’s Campaign, which supports the right of family carers to stay with relatives who have dementia. John’s Campaign was founded in 2014 in memory of Nicci’s father John Gerrard, who had Alzheimer’s and died in a hospital where caregiver access was restricted.

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  • Nearly everyone tells APPG on Dementia that rights are ignored

    Nearly everyone tells APPG on Dementia that rights are ignored

    24.06.19 A new report from the All-Party Parliamentary Group (APPG) on Dementia shines a spotlight on dementia as a disability, finding that 98% of the 2,521 survey respondents thought that the “hidden” nature of dementia meant that social barriers confronting them were higher than for other conditions. APPG co-chair Debbie Abrahams MP has secured a Commons debate on Tuesday on improving the lives of people with dementia, where the six areas for action highlighted in the report are likely to be discussed: employment, social protection, social care, transport, housing and community life. Abrahams has asked for contributions to her Commons debate via Facebook HERE

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  • E-Newsletter - 21 June 2019

    E-Newsletter - 21 June 2019

    Here is this week’s round-up of dementia care news, stories and comment. This week's topics include new statistics from Public Health England on deaths from dementia and latest news from submissions to the All-Party Parliamentary Group on Dementia. It is an editor's selection which we hope you will enjoy.

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  • E-Newsletter 14 June 2019

    E-Newsletter 14 June 2019

    Here is this week’s round-up of dementia care news, stories and comment. This week's topics include the latest diagnosis figures, attacks on care staff and a National Day of Arts in care homes. It is an editor's selection which we hope you will enjoy.

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  • Scottish parliament backs Fair Dementia Care campaign

    Scottish parliament backs Fair Dementia Care campaign

    21.06.19 Fifty-three members of the Scottish parliament have thrown their weight behind Alzheimer Scotland’s Fair Dementia Care campaign, acknowledging the view that people with advanced dementia “should receive the expert health care services that they need on an equal basis with other progressive terminal conditions.” The Fair Dementia Care campaign calls for free NHS care for those with advanced dementia. Amy Dalrymple, Alzheimer Scotland head of policy, said she was delighted that MSPs from all parties had spoken in support of the campaign. “We will now ask those MSPs to follow up on their support for the campaign in parliament by committing to ensuring that their party supports Fair Dementia Care in their next manifesto,” she commented.

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  • KCL researchers call for evidence on residential respite services

    KCL researchers call for evidence on residential respite services

    20.06.19 Researchers at King’s College London (KCL) have put out a call for evidence on models of residential respite services for people with dementia. In a study funded by Alzheimer’s Society, they are seeking information about different models so as to gain an overview of services in England. The research team said: “Respite services give carers a break from caregiving. They are often seen as an essential element of support, one which may delay or prevent a move to a care home. Sometimes, the term ‘restorative care’, instead of ‘respite care’, may be used to reflect the benefits for the people being catered for.” The study is being conducted by KCL’s NIHR Health & Social Care Workforce Research Unit and, if readers would like to contribute or find out more, email laura.cole@kcl.ac.uk.

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  • National Day of Arts in Care Homes gives boost to creative activities

    National Day of Arts in Care Homes gives boost to creative activities

    19.06.19 Two brand new arts projects will launch on the inaugural National Day of Arts in Care Homes, which will be the first such day dedicated to the arts in care homes and will take place on 24 September. Accompanied by an Arts in Care Homes website, the aim is to provide a focus for national arts resources and celebrate the benefits of arts activities for care home residents and staff. The projects being launched as part of the national day are Only Connect, a creative letters and pen pal resource pack, and an Arts Fund Voucher Scheme for care homes to use the vouchers to pay for arts-related activities. The National Day of Arts in Care Homes is expected to be supported by programmes in art galleries, museums, schools and arts organisations. It is organised by NAPA (National Activity Providers Association) and funded by the Baring and Rayne Foundations. Find out more by going to the new website at www.artsincarehomes.org.uk.

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  • Care sector union claims attack figures are just 'tip' of the iceberg

    Care sector union claims attack figures are just 'tip' of the iceberg

    18.06.19 Care sector union GMB has said that statistics showing that care workers have suffered more than 6,000 violent attacks in the past five years are the “tip of the iceberg”. According to the union, which obtained figures from the Health and Safety Executive (HSE), 5,008 care workers were hurt sufficiently to have to take seven or more days off work while 1,026 workers suffered a “specified” injury such as a bone fracture or loss of consciousness. But the GMB insisted that the true figures were likely to be much higher since the HSE had warned that “non-fatal injuries are substantially under-reported,” it said. “These figures are the tip of the iceberg - they only include the most serious injuries, and our members have to deal with violence on a daily basis,” said GMB national officer Rachel Harrison.

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  • Big increase in dementia diagnoses among older people

    Big increase in dementia diagnoses among older people

    17.06.19 Dementia diagnoses among older people have shot up 7% to record levels in the past three years, new figures from NHS England show. According to the data 453,881 over-65s had a diagnosis in May this year, compared with 424,390 people when figures were first recorded in June 2016. Alistair Burns, NHS national clinical director for dementia, said it was now being identified in a timely way, which meant that more people were getting the care they needed. “As the population ages, the NHS is having to run to keep up as dementia becomes a challenge for more and more families, which is why the NHS Long-Term Plan sets out a blueprint for older people’s care and makes early diagnosis and treatment for major health problems a top priority,” Burns commented. But Jeremy Hughes, Alzheimer’s Society chief executive, said it was vital that the NHS plan focused on the specific needs of people with dementia, otherwise it would fail.

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  • Government pledges £5m as charities highlight 'loneliness epidemic'

    Government pledges £5m as charities highlight 'loneliness epidemic'

    17.06.19 Research released for Carers Week last week (10-16 June) suggests that there is a “loneliness epidemic” facing the UK’s family carers. New figures from charity coalition led by Carers UK indicate that carers are seven times more likely to be lonely compared with the general public and that 35% are always or often lonely as against 5% of the overall population. The research pins the blame on not having enough time away from caring duties to participate in leisure activities - or not having the money to do so - as well as the stigma of being a carer. It was published as the government announced a £5 million “carers innovation fund” for creative and cost effective ways of supporting unpaid carers, such as “technology platforms” to help them take a break or peer support groups and short courses to reduce isolation.

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